3 Years Without a Diagnosis - The Heartbreak

by Lisa
(Long Island, NY)

Almost 3 years ago, my husband hurt his feet by walking for 20 miles in the wrong shoes. Based upon feedback from various doctors and our own research, we believed that he had a case of plantar fasciitis and had strained some of the tendons in his feet and ankles. He went to several doctors and followed their numerous instructions regarding therapy and treatment. He went to physical therapy. He tried numerous orthotic inserts. Despite his efforts, the pain in his feet and ankles gradually ascended up both legs causing him to have constant tingling pain 24/7 no matter what position he sits, stands or lays in. We have been to so many doctors and have had so many tests but no one has been able to diagnose his condition. A couple of doctors have said that his nervous system is stuck in "fight or flight mode" and can't calm itself down. He is on so many drugs to help him deal with the pain. The pain has now seeped into his lower back, and he now visibly twitches at times. I am absolutely heartbroken and devastated to see my 48 year old, athletic, healthy husband constantly tortured by terrible pain without any relief. It is also so hard to see him try to function and go to work each day despite the pain and the mind-numbing effect of the narcotics. He rarely complains, but I don't know how much longer he can bear it, or how long I can bear watching him suffer. No person should have to suffer pain without end. I will never give up trying to find a doctor who can at least diagnose his condition so that we know if there's anything we can do to treat it. I share my story with you in the hope that some one may have some insight or word of advice which may help us to get on the right path and find some one who can help us. Thank you for taking the time to read my story.