Having to prove an illness (Epilepsy)
by Norm Beam
(Niagara Falls Ontario)
Ever since I was 5 years old, I always complained of weakness and tiredness. It seemed as if no one listened.
As years went on my condition turned worse, especially during my teenage years. Again no one listened.
By the time I was in my twenties, I was in pretty bad shape. My muscle would easily and painfully cramp up.
It took until the age of 30 when I saw a specialist for another medical problem, and he could see that there was a problem with my muscles.
A week later, I was diagnosed at Toronto General Hospital with having a mild form but very painful type of Muscular Dystrophy.
I believe if they would of actually listened to me earlier, I wouldn't have so much muscle damage.
In the past 5 years, I have been fighting a new battle in which I have to prove myself once again.
I have been suffering from seizures, and was told by one doctor that I have Epilepsy, and now they say it "might" be no epileptic seizures. Having so many grand mal seizures is proof enough for me.
In order for any doctor or medical professional to even acknowledge that I had a seizure, they have to witness it...what a joke.
I have been having paralysis after a seizure, in which my only explanation is from a condition called Todd's Paralysis, a condition that comes after having a seizure. My doctors take on this is that I read the internet too much.
Very frustrating to say the least.
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